Mahlet Mesfin

Congenital Hyperinsulinism International

Congenital Hyperinsulinism International (CHI), a 501(c)(3) organization, is an independent patient organization dedicated to improving the lives of people with the rare condition, congenital hyperinsulinism. CHI: Advocates on behalf of children and adults with congenital hyperinsulinism. Creates and provides educational resources about congenital hyperinsulinism to affected individuals, families, medical professionals, school personnel, and members of the general public. Supports research and development to better understand and treat congenital hyperinsulinism, with the ultimate goal of finding a cure. Supports children, adults, and their families living with congenital hyperinsulinism. Increases awareness of congenital hyperinsulinism, especially among medical personnel, in order to improve timely diagnosis to prevent brain damage and death. CHI has partners all around the world including leading researchers, clinicians, hyperinsulinism centers, biotech companies, affected individuals and families, governmental agencies and elected officials, and other advocacy organizations. We work together to ensure all born with congenital hyperinsulinism have access to effective treatments and the support needed to lead long and healthy lives and to find a cure accessible to all. .